Fundraising for CJD

Thank you for your generosity & support - it means so much!

What?

Creutzfeldt-Jakob Disease (CJD), is a rare neurodegenerative disease that has no treatment or cure. This rapidly progressive neurological disorder impacts roughly 350-400 people in the United States annually. The CJD Foundation is dedicated to supporting those affected, raising public awareness, fostering education, advocating for policy, and funding research into treatments and diagnostics.

Why?

In 2023 my dear sweet beautiful Aunt Koko entered Heaven and stopped suffering from CJD. Koko was full of joy - if you knew her, you can still hear her beautiful laugh. She truly was a shining light - and we feel it's important to now shine light on this disorder that has no cure. While thankful for our amazing memories and time together - we are praying & walking for a cure in hope that others don't experience this disease.

THANK YOU!

For any donation of $200 or more, I will post a ice bucket challenge video to this page thanking you for your generosity!

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Bethany Neenan June 2025 $100.00
  • Bethany Neenan June 2025 $100.00

My Badges

  • Team Fundraising Leader
    Team Fundraising Leader

    Awarded when a Team Member raises the most funds for their team

    Awarded 06/17/2025

View All Event Badges

My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.