Raising Money to Find the Cure for CJD

Stacey's Story

Stacey (Smith) Bouse lived a life filled with love, dedication, generosity, and service. Just 84 days after the first supicious symptoms appeared, Stacey died on January 1, 2025 from CJD—a rapid degenerative brain disease with no current treatment or cure. She was just 45 years old. 

Please join us in raising money to find a cure for the disease that took her too soon. 

There are so many things you should know about Stacey. She was a dedicated runner, completing her fifth marathon just weeks before the symptoms of CJD began. She was a math whiz and completed her certification to be a financial planner just days before her symptoms began. 

Above all, being a mom was her greatest joy. Stacey's commitment to her community was inspiring. She faithfully served at the local soup kitchen and YWCA, was deeply involved in fundraising efforts for the Walk to End Alzheimer's, and served on the school PTO board. 

By contributing to our fundraising efforts, you're making a direct impact on research, advocacy, and family support. The CJD Foundation is highly rated charity and $0.88 of every dollar goes directly to the mission. The annual Strides for CJD event is the major funding source for the Foundation and is growing in impact every year. 

Indiana does not currently have a Strides for CJD event — so I will be traveling to Denver, Colorado to participate in their event along side Stacey's brother, Jeff, and his wife, Stephanie. The Strides for CJD in Denver takes place on October 11, 2025. 

Please join me in fighting for a cure and honoring Stacey. 

 

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About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Anonymous October 2025 $150.00
  • Facebook Donor September 2025 $100.00
  • Facebook Donor September 2025 $50.00
  • Linda Jones August 2025 $42.40
  • Kelly and Christopher Pugliese August 2025 $50.00
  • Anonymous August 2025 $500.00
  • Facebook Donor August 2025 $500.00
  • Facebook Donor August 2025 $400.00
  • Facebook Donor August 2025 $288.85
  • Facebook Donor August 2025 $255.58

My Badges

  • Team Fundraising Leader
    Team Fundraising Leader

    Awarded when a Team Member raises the most funds for their team

    Awarded 07/13/2025

  • Profile Completed
    Profile Completed

    Awarded when Anyone completes their profile

    Awarded 08/02/2025

  • Most Donors
    Most Donors

    Awarded when Anyone gets the highest number of donations

    Awarded 08/02/2025

  • Fundraising Achieved
    Fundraising Achieved

    Awarded when Anyone reaches 100 % of goal

    Awarded 08/02/2025

  • Donation Goal Reached!
    Donation Goal Reached!

    Awarded when Anyone reaches 100 % of goal

    Awarded 08/02/2025

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My Teammates

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.