Date: TBD
Location: TBD
Schedule of Events: TBD
*Event is on rain or shine*
Captain: Name - email (linked)
Social Media Account: link (linked)
Note:
The St. Louis Strides event is in memory of, and support for all those who have been impacted by CJD.
Britt Nelson started the St. Louis Strides for CJD walk in 2019 as a way to give back to families in her area who have been affected by Creutzfeldt-Jakob Disease (CJD)—creating a supportive space where families can grieve together, uplift one another, and raise funds to support research and improve diagnostic tools.
Creutzfeldt-Jakob Disease (CJD) is a rare, fatal brain disorder within a group of illnesses called prion diseases. The incidence of CJD cases worldwide is one to two cases, per million individuals per year. In the United States this statistic translates to nearly 500 new cases per year. Eighty-five percent of CJD cases are sporadic, meaning there is no known cause at present.
Through her work with Dr. Ances at the Ances Bioimaging Laboratory, she’s witnessed many patients, and their families, navigate the stages of this disease—from diagnosis to the end of life. It’s been one of the most profound and impactful experiences in their clinic, seeing firsthand the devastation it brings to both individuals and their loved ones.
This year’s St. Louis Strides for CJD walk is taking place on [date] at [location].
“It’s a privilege to create a space where families can remember their loved ones and connect with others who have experienced the same loss. This is a devastating disease, and if we can help raise awareness and support research through our efforts, I’m honored to be a part of that,” said Britt.
All community members are invited to take up the fight against CJD by registering, starting a team and fundraising. The walk is intentionally low-key, with plenty of time for connection and reflection. Participants share memories and photos of loved ones, enjoy some snacks together, and take a walk through our beautiful park—chatting about stories, moments, and the people we’ve lost.
“The highlight of this event, for me, is seeing the families return year after year—watching them grow and witnessing the bonds they’ve formed with one another. It’s incredibly meaningful to see friendships develop and deepen over time,” said Britt.