My Personal Fundraising Page

My name is Victoria Ellis and I am fundraising for the CJD Foundation in memory of my mom, Rosanne. My mom was fun, loving, caring and the life of the party. Everyone who knew her has a story to share that highlights what a special and one of a kind person she was. My mom and her sister were both diagnosed with and passed from GSS, a form of prion disease, in the 2000s, before any promising treatments or clinical trials were available for prion disease. I continue to fundraise in their memory in order to support every effort to end the pain and suffering caused by this monstrous disease. Thank you for your support! We will keep striding towards a cure.

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Anonymous Sending you lots of love and hugs! Xoxo Alicia, Christian, Carina, and Julian 2 weeks ago $106.00
  • Nicole Williamson 2 weeks ago $250.00
  • Bernadette Kennedy In memory of your beautiful Mom. 2 weeks ago
  • Allison Inho 2 weeks ago $53.00
  • Stephany Tandy 2 weeks ago $106.00
  • Nicole Williamson 2 weeks ago $250.00
  • Anonymous Sending you lots of love and hugs! Xoxo Alicia, Christian, Carina, and Julian 2 weeks ago $106.00
  • Stephany Tandy 2 weeks ago $106.00
  • Mary Anne and Ron Barcellino Keep on pushing forward!!   Love you!!   2 weeks ago $106.00
  • Stephanie Wallace 2 weeks ago $106.00

My Badges

  • Team Fundraising Leader
    Team Fundraising Leader

    Awarded when a Team Member raises the most funds for their team

    Awarded 08/13/2026

  • Fundraising Achieved
    Fundraising Achieved

    Awarded when Anyone reaches 100 % of goal

    Awarded 08/14/2026

  • Donation Goal Reached!
    Donation Goal Reached!

    Awarded when Anyone reaches 100 % of goal

    Awarded 08/14/2026

View All Event Badges

My Teammates

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.