My Personal Fundraising Page
In the fall of 2022, my stepdad Bill started to have strange neurological symptoms. Doctors weren't sure what was going on, symptoms got worse, and he passed away in February 2023, just 3 months after symptoms started and without a certain diagnosis. We later found out that he had had CJD, a rare and fatal neurodegenerative disease for which there is no cure and currently no therapies. I am joining Strides for CJD this fall and fundraising for the CJD Foundation in his honor. Hopefully we will have a cure in the future and other families will not have to go through this. It's even more important to fundraise in recent years as funding for the foundation and research is in danger of being cut. We miss Bill every day. Please consider donating. Thank you!!
About Fundraising
Donations of $250 and above are considered sponsorships.
Sponsorship Levels:
- Premier: $20,000
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only.
Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.
*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.
How to Register
My Supporters
- Lauran Fechte A day ago $159.00
- Biddy Labutka Miss you every day big brother❤️ 2 weeks ago $250.00
- Courtney Zeitounian 2 weeks ago $100.00
- Lori King 2 weeks ago $26.50
- Patricia D'Andrea 4 weeks ago $100.00
- Biddy Labutka Miss you every day big brother❤️ 2 weeks ago $250.00
- Lauran Fechte A day ago $159.00
- Courtney Zeitounian 2 weeks ago $100.00
- Patricia D'Andrea 4 weeks ago $100.00
- Lori King 2 weeks ago $26.50
My Badges
View All Event BadgesMy Teammates
-
Annabel Lewis Team Captain $30,858.80
-
Patricia D'Andrea $635.50
-
Deirdre Meaney $281.00
-
Isabel Namath $20.00
-
Johnny LaVan
-
Annie Ryan
-
Gracie Lewis
-
Maya Lewis
-
Wendy Lewis
-
Jody Lewis
-
Becky Pitner
-
Julia Heller $0.00
-
Andrew Flatt
-
Eleanor Kane
-
Alyssa Klauder
-
James Del Monte
-
Kayli McGlynn
-
Layton Keefer
-
Kristen Coyne
-
Kendall Dietterich $0.00
-
Sarah Grudza
-
Alex Pitts
-
Rose McWilliams
-
Angus Coutts $0.00
-
Caroline Scarlato
About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.