My Personal Fundraising Page

In memory of my dad, John F. LeClair

On June 15, 2026, I lost my dad, John, to Creutzfeldt-Jakob Disease (CJD). He was only 60 years old.

Before my dad became sick, CJD was something I had never even heard of. Then suddenly, it became a part of our lives in the most devastating way. CJD is an incredibly rare and aggressive disease, and watching how quickly it took my dad from us is something I will never forget.

I’m participating in Strides for CJD in memory of my dad and for every family who has had to experience the heartbreak and helplessness that comes with this disease. I’m raising money to support CJD research, education, advocacy, and families navigating a diagnosis no one is ever prepared to receive.

There was nothing we could do to save my dad, but I can do something in his memory.

Every step I take will be for him. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

Understanding CJD

$452.51

achieved

$400.00

goal

of your goal reached

Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Amy Van Paepeghem Sending you so much love!!  4 weeks ago $26.50
  • Facebook Donor 4 weeks ago $40.00
  • Leigha Edmands You are amazing <3 in loving memory of your father I hope this day brings you comfort helping others find much desired potential answers for and understanding of this terrible disease.. Team LeClair!! 4 weeks ago $20.00
  • Aimee Fisher 4 weeks ago $40.00
  • Anonymous 4 weeks ago $25.00
  • Krystle Hairston 5 weeks ago $100.00
  • Facebook Donor 5 weeks ago $75.00
  • Maureen Waldron 5 weeks ago $50.00
  • Kristen Breault 5 weeks ago $50.00
  • Facebook Donor 4 weeks ago $40.00

My Badges

  • Team Fundraising Leader
    Team Fundraising Leader

    Awarded when a Team Member raises the most funds for their team

    Awarded 09/16/2026

  • Fundraising Achieved
    Fundraising Achieved

    Awarded when Anyone reaches 100 % of goal

    Awarded 09/17/2026

  • Donation Goal Reached!
    Donation Goal Reached!

    Awarded when Anyone reaches 100 % of goal

    Awarded 09/17/2026

View All Event Badges

My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.