My Personal Fundraising Page
CJD (Creutzfeldt-Jakob Disease) is a rare and devastating disease that took my mom from us two years ago. It comes on suddenly and progresses incredibly fast, taking our loved ones from us in a matter of weeks. Our family has also lost my grandfather Sibby and my cousin Frankie to this horrible disease. ?
Unfortunately, CJD continues to deeply affect our family, which is why raising awareness and supporting research means so much to us.
On October 3rd, we’ll also be coming together for the CJD Walk at Breakheart to help raise money and, just as importantly, raise awareness for this awful disease. The more people who know about CJD, the more attention, research, and funding we can bring to it—with the hope that someday there will be an effective treatment or cure.
This cause means more to our family than I can put into words. Every ticket, every donation, every person who joins us at the walk, and every share helps support The CJD Foundation and gets the word out about a disease that far too few people know about. ?
Let’s keep talking about CJD, keep raising awareness, and keep fighting for the families affected by it. ?
About Fundraising
Donations of $250 and above are considered sponsorships.
Sponsorship Levels:
- Premier: $20,000
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only.
Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.
*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.
How to Register
My Supporters
- Nicole Pagliarulo 3 days ago $50.00
- Stephanie Lauria 4 days ago $100.00
- Michael DeAngelis 2 weeks ago $50.00
- Ana Dumais 2 weeks ago $53.00
- Kathleen Girolamo 3 weeks ago $250.00
- Kathleen Girolamo 3 weeks ago $250.00
- Stephanie Lauria 4 days ago $100.00
- Renee Merchant 3 weeks ago $100.00
- Ana Dumais 2 weeks ago $53.00
- Diana DeSantis I pray a cure is found someday for this horrible disease. I miss Janis everyday. ❤️ Wishing you and your family all the best. 3 weeks ago $53.00
My Badges
This user hasn't earned any badges yet.
My Teammates
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Doreen Carbone $3,622.00
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Denise Chainey Team Captain $3,209.10
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Renee Merchant $656.00
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Mary Carbone $125.00
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Diane Bruno $103.00
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Victor Bruno $103.00
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Joe Girolamo
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Emma Girolamo
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Jeffrey Girolamo
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John Ciampa $0.00
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Kathleen Girolamo
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Julie Ahern
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Lisa Jones
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Kathy Drake
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Kerry Conner
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Nancy Dasaro $0.00
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Rene Wacksman
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Donna Carbone
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Elaine Quartarone
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Gloria Johnson
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Joe Johnson
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Wayne Chainey
About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.