Our Team Fundraising Page

On August 10, 2021, our mom, Tracye Deese, passed away from CJD. Watching someone you love battle this devastating disease is heartbreaking, and as caregivers, you often feel helpless knowing there is no cure. That is why continued research is so important—it offers hope for families who may one day face this unimaginable journey.

As difficult as it is to think back to those final days in the hospital and during hospice, I know in my heart that Ma would want us to do everything we can to help advance research and move closer to a cure. She was a guiding light whose kindness, strength, and compassion touched everyone who had the privilege of knowing her.

In her honor, I have chosen to keep the same team name we proudly used when we first participated in Strides for CJD in 2024 in Fairfax, Virginia.

If you’re able, please consider supporting our team by making a donation. Every contribution, no matter the size, helps fund critical CJD research and brings hope to families affected by this devastating disease. Thank you for helping us honor Ma’s memory and support the search for a cure.

 

#Tracye’sFireflies

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

Text to Give

To donate to our event text STRIDES2026 to 50155.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

Our Team

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Our Supporters

  • Catherine Deese 2 weeks ago $265.00
  • Catherine Deese 2 weeks ago $265.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.