Team Kenny Calvin

While we won't be participating in an official walk this year, we'd be so grateful for your support. Whether through a donation or by simply sharing our page, you're helping the CJD Foundation bring hope, support, and answers to families navigating this devastating disease.

In Memory of Kenny Calvin – Strides for CJD

Kenny was a devoted husband, father, grandfather, friend, and the kind of person who never hesitated to help someone in need. Kenny had an infectious enthusiasm for life and spoke about the people and things he loved with such genuine passion that you couldn't help but love them too.

In February 2026, we lost Kenny to Creutzfeldt-Jakob disease (CJD), a rare, rapidly progressive brain disease that changed our lives in a matter of weeks. Like so many families, we had never heard of CJD until it suddenly became part of our story. As the disease quickly stole Kenny's memory, movement, speech, and independence, we found ourselves searching for answers in the midst of the unimaginable.

During those incredibly difficult weeks, the CJD Foundation became an invaluable source of trusted information, support, guidance, and compassion for our family. They helped us understand a disease that felt impossible to comprehend and reminded us that we were not alone.

We're raising money for Strides for CJD to honor Kenny's life and support the organization that gave so much to our family. Every donation helps the CJD Foundation provide hope, education, support for families, and critical research toward better treatments and, one day, a cure.

Thank you for remembering Kenny and for walking alongside us in his memory.

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

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Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

Our Team

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Our Supporters

  • Allie Avonbridge Our hearts go out to you <3 helping others is such a wonderful legacy to leave!  -Allie and Adrian Avonbridge  5 days ago $50.00
  • Merrilee Bellomy 2 weeks ago
  • Maureen Nelson Missing my little brother so much 2 weeks ago
  • Michele Engleman 2 weeks ago $50.00
  • Linda Tang 3 weeks ago
  • Bob and Betty Calvin 3 weeks ago $1,000.00
  • Sherry & Steve McGuire 3 weeks ago $106.00
  • John and Martha Bowman 3 weeks ago $100.00
  • Jill Steiner Dong 3 weeks ago $100.00
  • Marianne Healer Love and support to you and family! 3 weeks ago $53.00

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.