For those that have met Logan. You know he is an amazing human being with a big personality. He says hi to anyone walking by, is always open for a hug, and finds the joy and laughter in life. 

As many know, our son (Logan) has Smith Magenis Syndrome (SMS). We are proud to support SMS in any way we can. Supporting research helps these amazing individuals overcome many obstacles they face in life.

Logan faces many challenges day to day: emotional dysregulation, sleep disturbances, impulsive behaviors, speech issues, orthopedic concerns, and a few other health concerns related to SMS. Our goal is not to change the wonderful person Logan is - but to learn more about SMS to help reduce or elemate some of those challenges he faces to thrive in life. 

By donating, you are supporting the SMS Research Foundation (SMSRF). This foundation is dedicated to genetic therapies targetting SMS. It gives the opportunity or the potential to improve or eliminate some of the key symptoms of SMS. What we learn about SMS can also help breathroughs in supporting other rare diseases. 

We will be joining and supporting another SMSer at the Walk for Will. It is on September 26 at 9:00AM at Como Lake Pavilion in St. Paul, MN. Can't wait to connect and support SMS!!