As many of you know, Jacob and Ruth have epilepsy. As is the case with all families who are affected by epilepsy, understanding the impact of epilepsy for our children has been a journey. As we navigate how to best manage the seizures and understand how this impacts Jacob and Ruth, as well as our family, we have had challenges. My best description of epilepsy is a lightening storm. You never know when and where it will strike. However, there are many things that can be done to weather the storm. The support of friends, family and organizations like Epilepsy Foundation of Minnesota (EFMN) have truly helped create a path of light for us.

When Jacob was 3 years old, we attended our first Shining Star event, through EFMN. He was so excited about the possibility of meeting other kids who “take medicine” too. He (and us), like many others felt very alone prior to this. It has been wonderful to connect with other families who are making their way through their own journey. The Seizure Smart School Program has helped to educate Jacob’s school and classmates about seizures, helping to reduce stigma and keeping Jacob safe. Epilepsy Day Camp also continues to be a highlight of his summer. 

Please join us for a virtual neighborhood walk on October 3, or if you are able, please donate to help support other people and families with epilepsy!