Why I Joined the Warrior Challenge

Henry is typically the happiest kid I know. He thinks everything is funny, rarely sits still, and is wild in the best way, climbing on everything and exploring the world with fearless curiosity. He loves hugs and snuggles, and the way he shows love is by pressing his face against yours. His joy is infectious, and every day with him is a reminder of resilience and wonder. In October 2023, Henry was diagnosed with SCN2A, a very rare genetic disorder that affects brain development and can cause seizures, developmental delays, feeding challenges, and more. While having a diagnosis brought clarity to many questions, why he had delays, food issues, and seizures. The future is still extremely uncertain. Will he talk? Will his seizures return? These unknowns weigh heavily on our hearts, but Henry faces each day with courage and joy. Every day brings new challenges, multiple therapies, medical appointments, and managing medications. Yet, Henry’s spirit never dims. He is a true warrior, living life with curiosity, laughter, and love. Funding SCN2A research gives hope; hope for treatments, hope for therapies, and hope that families like ours can have answers and better outcomes in the future. Every dollar raised brings us closer to breakthroughs that could change the lives of children like Henry. Join us in honoring Henry’s strength and spreading hope by contributing to his Warrior Challenge. Your support helps fund critical research for SCN2A and brings us all closer to a world where children like Henry can thrive.

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  • Anonymous August 2025 $16.56
  • Anonymous August 2025 $16.56

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