Our son, Alex, amazes us on a daily basis. The simple tasks and activities of daily life that we take for granted…..he fights for. Being the parents of an SCN2A child has proven to be the most challenging yet extremely rewarding facet of life. Being able to witness his personal growth is an unmeasurable gift.

Whether seizure disorders or autism, SCN2A related-disorders takes the form of many different faces and offers of diversity of challenges. FAMILIESSCN2A FOUNDATION MISSION…
to accelerate research, build community, and advocate to improve the lives of those affected by SCN2A-related disorders around the world.

Spreading awareness is vital. Without us participating in a random research study, we would have never known about SCN2A. That isn’t right. Individualized medications and treatments are a reality. Phase 3 trials are underway to help kids with SCN2A. A cure is a realistic, potentially life-saving goal for some of these children.

Meeting the numerous SCN2A Warriors and their families have created new found hope and rejuvenated energy into this cause. Please support in any way you can.