Why We Fight for Ben’s Bunch

Ben’s Bunch is more than a team. It’s the group of people who have chosen to stand beside Ben and fight for his future.

Ben has been living with an SCN2A-related disorder since he was a baby. Nearly 15 years ago, our lives changed completely when seizures began and we eventually received a diagnosis we had never heard of: SCN2A.

Back then, there were very few answers, little research, and no roadmap for what came next. We didn’t know what Ben’s future would look like.

On October 1st, Ben will be 16, and he continues to surprise us, teach us, and inspire us. He has also been at the heart of a movement that has helped transform what is possible for people living with SCN2A-related disorders.

But we aren't finished.

There are still no approved treatments specifically for SCN2A. Ben and thousands of other Warriors are still waiting for therapies that can improve not only seizures, but communication, movement, cognition, independence, and quality of life.

That’s why Ben’s Bunch is taking on the Warrior Challenge.

Our goal is to raise $16,000 ($1,000 for every year Ben has lived with this disorder).

Every dollar our team raises supports the FamilieSCN2A Foundation’s work to accelerate research, advocate for our Warriors, and support families around the world.

Join Ben’s Bunch. Donate. Take on your own challenge. Share our page. Ask your friends to help.

Ben has spent his whole life fighting. This is our chance to fight for him.

And we won’t stop until every SCN2A Warrior has the chance for a better future.