We are taking part in the Warrior Challenge, the FamilieSCN2A Foundation's largest community fundraising and awareness event to help raise critical funds for SCN2A research, advocacy, and family support.

SCN2A-related disorders are rare, devastating, and deeply underfunded. Families fight every single day and the Warrior Challenge is how we rally around them.

Every step taken, every dollar raised, and every voice shared carries Emily’s memory forward and brings us closer to breakthroughs, support, and hope.

Our daughter, Emily Katherine Dedon, gained her wings on January 2, 2026. She lived with SCN2A for almost 9 years. Each day was a struggle. Each day we faced these struggles together as a family and as a community.

You, our community, have supported us since Day 1. We come to you now asking that you continue to support this organization that is continuing the fight to give children like Em a chance, to give them hope, and one day a cure for SCN2A.

Thank you for visiting our page. Your support means everything.

Whether you donate, join the team, or help spread the word. You’re helping make every step count.