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On behalf of RSDSA and the individuals living with CRPS/RSD around the country, thank you so much for coming out for We're on Fire! Walk, Roll, Stroll - CRPS Awareness Walk. on Saturday, June 11th . It was a great day with blue skies, beautiful weather, and a high level of participation, energy and enthusiasm.

Kristie and Rose are grateful for the turnout, the donations made, and the incredible sponsors for the first We're on Fire Walk event.

The Orange County CRPS Survivors and Caregivers Support Group is excited to host the RSDCA We're on Fire! Walk, Roll, Stroll - CRPS Awareness Walk!

Complex Regional Pain Syndrome (CRPS) also known as Reflex Sympathetic Dystrophy (RSD), is a rare, debilitating neuro-inflammatory condition. It often leaves its victims in excruciating pain, requiring care from multiple medical professionals, and dependent on family and friends to accomplish the tasks of daily living. 

CRPS/RSD often develops after a fracture, sprain, surgery, or other, even minor, trauma to the body. It has the highest rated pain, 42 out of 50, on the McGill Pain Index, a scale that physicians use to measure and compare pain. It is rated more painful than amputation of a digit without anesthesia, childbirth, and even non-terminal cancer. In addition, the pain of CRPS/RSD is unrelenting and is experienced 24 hours a day, 7 days a week. Often, those with CRPS/RSD cannot even be touched by their loved ones because the pain is so excruciating. Since CRPS/RSD is a rare disease with less than 200,000 people in the United States diagnosed with it; there is little incentive for pharmaceutical companies or the medical community to address underlying causes or to develop effective treatments. For many individuals, this results in a progressive worsening of symptoms, disability and a life of unbearable pain.