Reflex Sympathetic Dystrophy Syndrome Association (RSDSA)

RSDSA gives those affected by CRPS/RSD education, advocacy and hope! From signs & symptoms, to diagnosis, to living with CRPS/RSD long term, RSDSA has information for adults and youth living with this painful and debilitating condition – as well as for their families and caregivers. RSDSA raises funds for research to find better treatments – and a cure – for CRPS/RSD. RSDSA’s does provide the education and support that helps with pain management. We do also support and fund research, but the real objective is to encourage individuals with CRPS/RSD to take positive control of their illness and enhance their overall well- being.

Zoe's Zoomalong Virtual Camp Presented by RSDSA & TCAPP

Six sessions of hands-on fun and games, creating, building, and cooking for children ages 5-17.

  • Limit is 10 children, it is first come-first served.
  • Children must be available for all six sessions.
  • Camp Schedule: August 9, 10, 11 and August 16, 17, 18th at 1:00pm. All times are Eastern Daylight Time.
  • Supplies and a camp t-shirt are included.
  • Cost: $25 refundable when your child attends all six sessions.

Deadline August 4, 2022.

Activity supplies included - will be shipped to the camper.

Each session will be led by professionals such as an Art Therapist, Lego Teacher, Pre-school Teacher and a Professional Chef who will guide your camper and their peers through engaging activities. 


Lego Masters



August 9


Arts & Crafts


August 10


Art Therapy

Mask Making


August 11


Baking with

Chef Mike

August 16






August 17  




 August 18 


The Coalition Against Pediatric Pain (TCAPP)

TCAPPlogo-284x125.pngBecause no child should live in pain

TCAPP is a national non-profit committed to improving quality of life for children living with chronic pain from rare diseases.  

TCAPP was founded by Mothers of  Children  who are effected by a chronic neuropathic pain disease. All of the founding families’ children suffer from CRPS/RSD (Complex Regional Pain Syndrome/Reflex Sympathetic Dystrophy) and many suffer from multiple pain conditions, such as Ehlers-Danlos Sydrome (Hypermobility Syndrome), muscle spasms, migraines, abdominal migraines, Postural Orthostatic Tachycardia Syndrome and painful Gastrointestinal issues.

Zoe's Heroes