2026 Move Your Pheet ○ Ollies PHEnomenal Squad

Oliver Kane

March 18, 2026 12:00am - May 31, 2026 11:59pm

Oliver's a rambunctious 2 year old living with PKU. His current PHE tolerance is 150mg a day, aka 2.5 grams of protein. Weekly finger pricks for blood test have become part of his routine. These test monitor phenylalanine levels & guide Oliver's dietary plan. Currently, his favorite foods are gummies, low protein pasta, berries, & of course fries. Earlier this month he started a medication trail with Javygtor. If Oliver is a responder, the medication it will help his body break down PHE allowing for more protein in his diet. Oliver is the youngest of three & the only one with PKU. He loves dogs, planes, being outside, & his siblings.

This is our third year participating in Move Your Pheet & we’re hoping to make it our most successful yet!
We’re proud to support the National PKU Alliance & the incredible work they do for individuals with PKU & their families. We’d love your support during the month of May, whether that’s getting active, talking to someone about PKU, or donating. Our family deeply appreciates your support on Ollie’s PKU journey.

Funds raised through Move Your Pheet help support:
• Research into new treatments, including gene therapy and tools like a home Phe monitor
• Community programs that connect and uplift PKU families
• Educational resources from infancy through adulthood
• The PKU Patient Registry

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$1,158.46

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$1,000.00

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Team Fundraising Leader

Awarded when a Team Member raises the most funds for their team

Awarded 05/01/2026
Fry Society Member

Awarded when Anyone reaches $250.00 in donations

Awarded 05/01/2026
Profile Completed

Awarded when Anyone completes their profile

Awarded 05/21/2026
Fundraising Achieved

Awarded when Anyone reaches 100 % of goal

Awarded 05/24/2026

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last years PKU walk

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Most Recent
Top Donors

The Dude 12 hours ago
Gpa & Gma Wagner 23 hours ago $301.45
Hannah Curtis DVM A day ago $103.95
Jessica Zager 2 days ago $103.95
Anne Schmidt 2 days ago $62.37

Gpa & Gma Wagner 23 hours ago $301.45
Anonymous 4 weeks ago $259.87
Hannah Curtis DVM A day ago $103.95
Jessica Zager 2 days ago $103.95
Parker & Lainey Hilliard 2 weeks ago $67.00

The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.

NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140

Oliver Kane

Oliver’s Donation Center

Oliver's PKU journey