2026 Move Your Pheet   ○   Ollies PHEnomenal Squad

Oliver Kane

March 18, 2026 12:00am - June 30, 2026 11:59pm

Oliver’s Donation Center

Oliver's PKU journey

Oliver's a rambunctious 2 year old living with PKU. His current PHE tolerance is 150mg a day, aka 2.5 grams of protein. Weekly finger pricks for blood test have become part of his routine. These test monitor phenylalanine levels & guide Oliver's dietary plan. Currently, his favorite foods are gummies, low protein pasta, berries, & of course fries. Earlier this month he started a medication trail with Javygtor. If Oliver is a responder, the medication it will help his body break down PHE allowing for more protein in his diet. Oliver is the youngest of three & the only one with PKU. He loves dogs, planes, being outside, & his siblings.   

This is our third year participating in Move Your Pheet & we’re hoping to make it our most successful yet!
We’re proud to support the National PKU Alliance & the incredible work they do for individuals with PKU & their families. We’d love your support during the month of May, whether that’s getting active, talking to someone about PKU, or donating. Our family deeply appreciates your support on Ollie’s PKU 
journey.

Funds raised through Move Your Pheet help support:
• Research into new treatments, including gene therapy and tools like a home Phe monitor
• Community programs that connect and uplift PKU families
• Educational resources from infancy through adulthood
• The PKU Patient Registry

 

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My Supporters

  • Mom & Dad Kane 3 weeks ago
  • The Dude 4 weeks ago
  • Gpa & Gma Wagner 4 weeks ago $301.45
  • Hannah Curtis DVM 5 weeks ago $103.95
  • Jessica Zager 5 weeks ago $103.95
  • Gpa & Gma Wagner 4 weeks ago $301.45
  • Anonymous Last month $259.87
  • Hannah Curtis DVM 5 weeks ago $103.95
  • Jessica Zager 5 weeks ago $103.95
  • Parker & Lainey Hilliard Last month $67.00

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About National PKU Alliance

The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.

NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140