Olivers Team Fundraising Page
In Oliver's honor we're raising money for NPKUA
Year 3 for our PHEnomenal Squad!
For the third year in a row Oliver's support system is coming together to spread PKU awareness. To everyone who has been part of this journey with us so far, thank you!! Your support over the past two years has truly made a difference & we wouldn’t be here without you.
PKU is a rare genetic condition where the body can’t properly break down protein. Specifically an amino acid called phenylalanine, PHE for short. People with PKU have to follow a strict lifelong low protein diet. Too much PHE can cause migraines, seizures, & permanent neurological damage. PKU'ers have special formula that provides all the other essential amino acids except PHE. Formula is taken daily to help maintain stable cognitive function, mood, & health. Everyday foods like meat, dairy, eggs, nuts, & bread, have to be limited or avoided. Meals have to be carefully planned, measured, & managed every single day. Low protein foods are often pricey & hard to find. Medically necessary formula & medication isn't always covered by insurance. These are a few reasons why we continue to "Move Our Pheet" each May.
As we head into year three, we’re hoping to grow our team & our impact. Your support helps improve access to medical foods, formula, medication, PKU research & more.
With love & gratitude, Oliver's parents.
**UT friends we will be doing a walk for Oliver on Sunday, May 24th. More details coming soon!**
Recent Activity
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$31.18 was donated to Ollies PHEnomenal Squad
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Debbie Nichols made a donation to Ollies PHEnomenal Squad
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Lidia Terziotti donated $31.18 to Ollies PHEnomenal Squad
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Desiree Daniels donated $31.18 to Ollies PHEnomenal Squad
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Gary VonColln donated $124.74 to Ollies PHEnomenal Squad
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Our Supporters
- The Dude 12 hours ago
- Anonymous 14 hours ago $31.18
- Debbie Nichols 14 hours ago
- Lidia Terziotti 15 hours ago $31.18
- Desiree Daniels 17 hours ago $31.18
- Gpa & Gma Wagner 23 hours ago $301.45
- Anonymous 4 weeks ago $259.87
- Nancy Kane Love you Ollie!!! 20 hours ago $176.71
- Gary VonColln 18 hours ago $124.74
- Deborah Higgins McLean 19 hours ago $124.74
About National PKU Alliance
The National PKU Alliance (NPKUA) is a nonprofit organization dedicated to improving the lives of individuals with phenylketonuria (PKU), a rare genetic disorder. Founded in 2008, NPKUA works to advance research for new treatments and a cure, support families and individuals living with PKU and advocate for policies that ensure access to care. To learn more and get involved, visit npkua.org.
NPKUA is an independent organization and a registered 501(c)3. EIN: 26-2849140