My Personal Fundraising Page

Hi my name is Mike and I am raising money to help find a cure for Rett Syndrome while competing in my first half marathon!  I am training with my wife, Kristin.  Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.

My Supporters

  • Kristin DeFinis November 2021 $20.00
  • Kristin DeFinis John and Denise Kurtz October 2021 $100.00
  • Doreen and Glenn Dieter Thank you Mike for running in honor of our granddaughter Emma October 2021 $250.00
  • Jodi Miller Way to go team! September 2021 $100.00
  • Stephanie Bream Go team Mike and Kristin ! What a great example of service, hard work and dedication for your boys !❤️ September 2021 $50.00
  • Doreen and Glenn Dieter Thank you Mike for running in honor of our granddaughter Emma October 2021 $250.00
  • Kristin DeFinis John and Denise Kurtz October 2021 $100.00
  • Jodi Miller Way to go team! September 2021 $100.00
  • Susan Lapp Weidner September 2021 $100.00
  • Stephanie Bream Go team Mike and Kristin ! What a great example of service, hard work and dedication for your boys !❤️ September 2021 $50.00

My Teammates

$1,000.00

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$1,000.00

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