My Personal Fundraising Page

Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.

My Supporters

  • Susan OHearn Thank you for the beautiful gray hat and Bruno sweater! February 2021 $50.00
  • Anonymous February 2021
  • Harold Huang February 2021 $40.00
  • Emily Rivers February 2021 $40.00
  • Anonymous February 2021 $50.00
  • View More Recent Supporters
  • UCP of MetroBoston, INC Donation from UCP July 2020 $300.00
  • Lauren Fant You do great things for so many! Thank you December 2020 $250.00
  • Lena Russell Hats December 2020 $200.00
  • Bryan Lafort Thanks for the awesome hats November 2020 $200.00
  • Ban-Khin Khaw Thank you for the 20 clear masks! July 2020 $200.00
  • View More Top Donors

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