I run because my sister and her Rett Siblings can not.

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep and scoliosis.

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, they are smart, strong, and waiting bravely for us to unlock the door to their recovery. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.

I run because Rett syndrome takes so much from our girls and boys.   My sister and Skylar, the beautiful and amazing women in my picture both lived with Rett Syndrome and made my world better.  They are both free of Rett Syndrome now but there are so many still living with Rett Syndrome who have to battle every day for the simplest things and yet they are most loving and amazing people I have ever met.  I am blessed to continue working with people with Rett Syndrome so I run for Kristi and Sky who taught me how to listen when there are no words and I run for all the amazing people with Rett that I work with now who help me remember what joy is.  

Please help us raise much needed funds for research, support, education and awareness.