Please help me support Girl Power 2 Cure in their efforts to raise funds for research for Rett Syndrome. My daughter Lexi was diagnosed with Rett Syndrome at 3.5 years old and continues to face challenges from the symptoms of Rett Syndrome. 

Rett Syndrome is a debilitating neurological disorder that predominantly affects females but can affect boys. It is the leading genetic cause of severe impairment in girls, brought on by a single gene mutation that leads to underproduction of an important brain protein.

Kids are born “normal,” but without the protein, begin to lose acquired skills between 1 and 3 years old. Many lose their ability to speak, walk or use their hands, and depend on their families for every part of their day. Complications include seizures, sudden death in their sleep, and scoliosis. Lexi could stand and walk independently, until 2 months before her 4 birthday. With the increase of Dystonia, "rett-episodes" and seizure-like activity, Lexi lost her ability to stand and move independently. This has caused Lexi a lot of anxiety (as would any person experiencing this) losing her ability to control her mobility and loss of independence. Lexi's family and her team continuously work to provide Lexi the accessibility and opportunities for her to independent as much as she can. However, we continue to hope for a cure that will give Lexi the chance to move independently like she did when she was younger. 

Despite their physical disabilities, girls and boys with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought. Amidst the mass confusion in their central nervous systems, we know Lexi is smart, strong, courageous, and a little bit cheeky. (One of her favorite words to describe herself on her AAC device). Lexi has so much potential and capacity as she continues to use alternative means to communicate with us. 

Today, there is no cure. But Rett Syndrome is CURABLE! Research has proven once protein levels are back to normal levels, symptoms subside.