The International Pleuropulmonary Blastoma (PPB) Registry is a resource for physicians, healthcare providers and families, offering valuable information about the rare chest tumor known as pleuropulmonary blastoma or PPB and other PPB-related conditions. The Registry encourages the collection of clinical data and biologic tissues to help determine the cause and best treatment of PPB.
We are currently using tumor and blood samples to learn more about novel ways to detect and treat PPB and other PPB-related conditions. The PPB Registry also collaborates with physicians and families around the world in caring for those diagnosed with PPB. The PPB Registry began in 1988 and is based at Children’s Minnesota.
Donations are needed in many areas to fund our work.