After experiencing CJD in their family, the Lewis Family recognized that families with a CJD diagnosis need help navigating and gathering information because so little is known about Prion Disease in much of the medical community. To ensure that help was available to other famililes in that situation, they launched the Lewis Family Fund to support a "Family Services Program Manager" role at the CJD Foundation.Their goal is to ensure that families facing a CJD diagnosis will quickly receive the referrals, resources, and accurate information they need from the CJD Foundation at time of diagnosis and during caregiving. 

To visit the "Fundraiser in Memory of Andy Lewis" page, which supports various programs of the CJD Foundation, click here.