In light of the heartbreaking and devastating nature of Creutzfeldt-Jakob disease (CJD), continuing to support research efforts to find a cure would mean more to us than words can express. CJD is a rare, fatal disease, and 90% of cases are sporadic, meaning they happen suddenly and without warning. Gavin had been living a wonderful, full, and healthy life, and in just two weeks, this disease has changed everything. Nothing could have prepared us for the shock, pain, and heartbreak of watching someone we love face this devastating illness.

Currently, clinical trials are underway for potential medications, offering a sense of hope in the face of a disease that has taken so much from so many families. Our deepest wish is that this research continues to move forward, so that one day, no other family has to endure the fear, helplessness, and heartbreak that come with this diagnosis.

If you feel moved to do so, please consider supporting this cause in honor of Gavin. The CJD Foundation provides grants to researchers each year who are working toward answers, treatments, and, ultimately, a cure. They also provide critical support to patients and families seven days a week, offering guidance, resources, and compassion during an unimaginable journey. Your support can help bring hope to families facing this awful disease and help honor Gavin’s life, strength, and the love surrounding him in a meaningful way.