Thanks for visiting my fundraising page! My birthday (Feb. 28 - which coincidentally falls on rare disease awareness day most years) is coming up and this time I would like to raise awareness and funds for Cure CMD, an organization that is near and dear to my heart. Their mission to advance research and support those living with congenital muscular dystrophy is incredibly important, and I would greatly appreciate your support in helping me reach my fundraising goal.
As you may already know, my son has L-CMD. A rare subtype of congenital muscular dystrophy caused by a mutation on the LMNA gene. Like other muscular dystrophies, it causes muscle weakness, motor difficulties and lack of control in the movement of the head, respiratory failure and cardiac abnormalities.
By making a donation, you will be directly contributing to the funding of CMD research and programming that benefit the congenital muscular dystrophy community. Every dollar makes a difference and brings us one step closer to finding effective treatments for this condition. Your generosity will not only be appreciated by me, but also the affected individuals and families they serve.
Whether it's a small donation or a larger contribution, every gift is meaningful and greatly appreciated. Together, we can make a positive impact for those living with congenital muscular dystrophy. Thank you so much for your support!