Your donation allows children not to dream of running one day, but ensures that they will run one day. Your donation is going to help adults get back up on their own two legs and feet. The doctors studying this genetic mutation will not only help the children and adults living with peripheral nerve damage, they will help humanity better understand genetics and how our very bodies communicate at the molecular level.
Sitarra's Story
My daughter Sitarra, 4, was born with CMT type 2c and it has caused the long muscles of her legs to suffer atrophy. Because of this, she cannot kick below the knees, so she doesn't know what it's like to kick a ball or simply stand on her own. Because of this, her feet curl inwards (like clubbed feet) even after having three surgeries before the age of three. Right now, she wears KAFO braces (knee-ankle-foot orthotics) to walk and uses a wheelchair when her feet grow tired. I support the CMT Foundation because I do not want other children to suffer the way mine has - going in and out of hospitals, seeing doctors 'religiously', getting put under for surgeries, having casts on her feet for months* at a time, attending various therapies... I wouldn't say there's hope for a cure. There is a cure. We just need the resources to find it, test it, and supply it. Thank you for any donation your heart decides to give.