Dear family and friends,
For those who don’t know, Neurofibromatosis also known as NF, is a genetic disorder of the nervous system that causes tumors to form on the nerves anywhere in or on the body at any time. Kenzley was diagnosed with NF in April of 2018. Thankfully, at this time, most of her symptoms have remained generally mild, and her team at Boston Children’s Hospital has done an amazing job keeping a close eye on her growth and any changes that may occur. For that, we are so grateful.
On September 10, 2022, Bryan will be biking 50 miles through Boston’s North Shore, as he participates in the 11th annual Coast to the Cure NF bike ride. Team Kenzley’s Krew has a goal to raise $1,000.00 towards finding a cure, and we are asking for your help! If you find it in your heart to help us reach our goal, 100% of your donation will go to Neurofibromatosis Northeast- a nonprofit organization with a mission to find treatments as well as a CURE for NF. This organization serves NF patients and families locally in Massachusetts, Maine, New Hampshire, Vermont, Connecticut, Rhode Island, Pennsylvania, New Jersey, and New York. Last November Morgan became a member of the NF Northeast Families and Community Committee, representing the Cape Cod area. It has been such a blessing to be able to help local families who are dealing with a new NF diagnosis.
Thanks so much for taking time to visit my fundraising page!