Lorelai’s Groupies Are Here Walking In Support Of The Ronald McDonald House Of The Greater Hudson Valley, After Being Supported and Uplifted By The Amazing Staff and Generous Volunteers At The WestChester Medical Center Campus. Robert and Brina First Time Parents Had A Very Unexpected Delivery Of Their Baby Girl Lorelai Who Was Considered To Be Completely Health Until Her Birth Where Medical Conditions Where Then Discovered. 

   Lorelai and Her Family Spent The First 6 Months Of Her Life Confined To A Hospital Bed Undergoing Life Sustaining and Enhancing Procedures To Improve Lorelai’s Quality Of Life. After Her Release From WestChester Medical and Blythedale Rehabilitation Center Lorelai Went Home and Continued Outpatient Treatment and Still Does. Receiving Therapy Daily and Endless Medical Appointments Routinely.   

   Lorelai Was Diagnosed At 1 Year Of Age With Sticklers Syndrome Where She Now  Faces A Long Road Of An Unpredictable Future With This Life Long Progressive Illness. Causing Worsening Hearing and Vision Loss. Along With A Long List Of Other  Medical Issues That Sticklers Syndrome Causes To The Entire Body. Lorelai Currently Is Severely Visually Impaired. When Lorelai Turned 3 She Was Officially Considered Legally Blind. Lorelai Utilizes Corrective Lenses and Utilized Bilateral Hearing Aids. 

  At 2 Years Old Lorelai Was Diagnosed With Bilateral Duane's Syndrome Type 3 Where Both Eyes Have Limited Ability To  Outwards. Lorelai Has Undergone  Her First Of Many Surgery That She Will Undergo On and Off Throughout The Rest Of Her Life Not Fixing But To Help Maintain Quality Of Life In Order To Limit Suffering From Pain Related To This Progressive Syndrome and To Aide In Limited The Double Vision Created.  

   Loreali Turned 3 Years Old This Year and  Despite The Many Obstacles She Has And Continues To Face She Is A Happy Upbeat Little Girl Who’s Laugh and Smiles Come From The Soul. She Loves Her Mammy, Daddy and Support System Of Not Only Her Family By Blood But Her Ronald McDonald House Family From The Maria Fareri Children's Hospital Location.

   We Couldn’t Be More Appreciative Of The Support We Have Received An Ongoing Support That They Have Provided To Our Little Girl From This Foundation That She Will Receive In The Future As We Walk This Life’s Long Road With Our Little Girl. Our Family Away From Home Spent and Continues To Spent Their Time With Us During Holidays, Rejoicing In Milestones, and Major Life Long Events As We Continue Lorelai's Life Long Journey With These Progressive Syndromes.  

     Lorelai is a NICU Graduate, Blythedale    Rehabilitation Graduate, Pierre Robin Sequence, Cleft Pallet, Sticklers Syndrome and  Bilateral Duane’s Syndrome Type 3  She Is Our Little WARRIOR!!!

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