The KAT6A Foundation is proud to sponsor the 2020 KATwalk!
Join us October 3rd - 4th for our annual walk/run.
This year our largest fundraising event will be held virtually. We invite families and friends of individuals with KAT6A and KAT6B gene mutations to raise awareness during the first weekend in October. We hope you will lace up your sneakers and go for a walk or run in your local community.
How can you support us?
Donate!
Your donation goes directly to the KAT6A Foundation, a 501(c)(3) organization supporting families and funding efforts to identify therapies for the KAT6A/B Disorder. The primary uses of the Foundation's funding are (1) bringing families and researchers together at the annual clinic at Johns Hopkins University, (2) sustaining and expanding the patient registry database to support potential drug trials, (3) funding preliminary research into the molecular effects of the KAT6A/B genetic mutations, and (4) funding the Empowered grants that provide assistive equipment and technology to our families.
Register!
Participate in the 2020 KATwalk by walking, running, or simply wearing your tshirt that day in your own home. You will be able to share a personal fundraising page when you register and make it on the leaderboard!
Buy a t-shirt!
Wear your tshirt while you walk and show your support for your favorite individual diagnosed with a KAT6A or KAT6B disorder. Be sure to share your photos with us on social media.
Share this fundraising page with your friends and family!
Who are we?
The KAT6A Foundation was created in 2017 by parents of children identified with a mutation in the KAT6A gene. We are the first ever 501(c)(3) nonprofit organization founded to support the international KAT6A syndrome community. Recently we have learned of the close genetic similarities to KAT6B gene mutations and are expanding our research and resources to support KAT6B families.
We began this year on a high note, when the KAT6A Foundation was chosen as part of the Chan Zuckerberg Initative's Rare As One Network — a group of 30 patient-led organizations that are accelerating research and driving progress in the fight against rare disease.
We also established our Empowered grant to provide assistance to families in need of therapeutic equipment and technology to use at home. We were able to fund 14 different grants and are looking to support more families in the future.
Unfortunately due to the Covid-19 pandemic, our 2020 clinic at John Hopkins University was postponed, but we are excited to come together for a meaningful event next year.
We look to the 2020 KATwalk to raise funding to sustain and build on these projects in 2021.
Learn more about us at www.kat6a.org.
T-shirts, get your t-shirts!
We are excited to share that you can order a t-shirt from Custom Ink to wear during your Virtual Walk. T-shirt orders will end on September 14th in order to assure that they will arrive in time for the event. Order your t-shirts here. T-SHIRT SALES HAVE ENDED.