Over the weekend of October 3rd - 4th I'll be participating in KAT6A Foundation's virtual walk/run to raise awareness and funds for the Kat6A foundation!
I'm organising this team and walking in honour of my beautiful and brave niece, Abby, who is one of only about 200 people worldwide diagnosed with Kat6A. With Abby and her family living on the other side of the world, we are limited in how we can support them. This walk is one tiny little way of supporting the foundation that has provided support to them.
How can you help?
==>Sign up to Run/Walk with me! Or join my team and organise your own group to walk/run!
Due to covid restrictions, we are limited to groups of 10 people in Brisbane. Therefore, I'll be doing several smaller walks over the weekend. Please consider joining me for one of these walks, or you could sign up to join our team with a few friends/family and organise your own walk/run as part of Abbys Aussies!
==> Donate!
If you can, donations are very much appreciated, as they go towards research and supporting Kat6a families. More details below.
==> Share!
Please consider sharing this link with your friends and family.
==> Learn about Kat6A
You can find out about Kat6a gene mutation and the foundation here: https://www.kat6a.org/faq-support-center/
==> Use Amazon Smile
If you shop at amazon.com, please consider using smile.amazon.com and selecting the Kat6A foundation as your chosen charity to receive 0.5% of your purchase price at no additional cost to you.
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Where do donations go? Your donation goes directly to the KAT6A Foundation, a 501(c)(3) organization supporting families and funding efforts to identify therapies for the KAT6A/B Disorder. The primary uses of the Foundation's funding are (1) bringing families and researchers together at the annual KAT6A clinic at Johns Hopkins University, (2) sustaining and expanding the patient registry database to support potential drug trials, (3) funding preliminary research into the molecular affects of the KAT6A and KAT6B genetic mutations, and (4) funding the Empowered grants that provide assistive equipment and technology to our families