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CHARLI'S STORY

Charli was diagnosed with Pulmonary Atresia at our 16-week anatomy scan.  She has been our amazing warrior since the day she was born!  At 4 days old she had her first catheterization and her first open heart surgery just shy of 3 weeks old where her amazing surgeon at NYU placed a BT Shunt.   Charli faced some lifte threatening post-op complications at 2-3 months old and had to have another surgery at 3 months old to do a pericardial window.     In summer of 2022 we traveled back to NYU to have another repair where her team closed her ASD, took down her shunt, reduced the size of her right atrium and repaired her tricuspid valve.  In utero we were told she would have  a 1-1.5 venticle anatomy, today she is a 2 VENTRICLE KIDDO!!  This is a true mircale for our family.    Charli has fought hard and continues to amaze us all with her strength and resilience.  She is a thriving 6 year old who loves basketball, gymnastics and all things girly.   WE LOVE OUR HEART WARRIOR CHARLI!  

Every 15 minutes in the United States, a baby is born with a congenital heart defect, making CHDs the most common birth defect in our country. The Congenital Heart Walk is dedicated to making a difference. Our mission is clear - we aim to raise funds to support The Children's Heart Foundation in its quest to advance the diagnosis, treatment, and prevention of CHDs by funding groundbreaking research.

We invite you to join us in this mission. By supporting our team or even walking with us, you're contributing to research that can save and enhance the lives of infants born with CHDs, as well as children and adults living with these conditions. Your support makes a significant impact, and for that, we want to say a heartfelt thank you.

Will you join us in making a real difference? Please consider supporting our team or walking with us. Every step we take brings us closer to improving the lives of those affected by congenital heart defects.