This month, I’m hosting a small online event to raise awareness of MED13L syndrome.
MED13L syndrome is a rare and underrecognized genetic condition. Many families face years of uncertainty, limited resources and support, and a lack of awareness even within the medical field.
My little sister has MED13L syndrome, and I’ve seen what this lack of awareness looks like.
If you’d like to support research, advocacy, and awareness through the MED13L Foundation, you can donate here. Every contribution—no matter the size—helps move things forward.
Or start with something just as important: tell someone about MED13L syndrome.