October 30, 2021 4:00pm - 8:00pm
Our Team Fundraising Page
We run to support families like ours! Hemophilia has been part of Kristin's entire life. Her father had severe Hemophilia A and needed daily treatment. She is a carrier for the disorder. It doesn't affect her personally, but She did pass it on to her son Jeremiah. We found out almost immediately after he was born that he has severe Hemophilia A. He received multiple doses of factor VIII before coming home from the hospital. In his first 2 years of life, we took many trips to the ER to get more infusions of factor VIII. He had so many bruises that we were afraid people would think he was abused. And we have spent countless nights worried about whether or not to take him to the ER. Medication has improved tremendously since Kristin's father was little! When Jeremiah turned 2, he started a new medication that she injects in his leg once a month. This is such an improvement over going to the ER to get an IV medication. He is doing well, but we will always worry about falls and accidents. The Hemophilia Foundation of Greater Florida has been a source of comfort, community, and education. They were our first call after his diagnosis. They instantly connected us with other families and helped us know what to do next. Please consider walking/running with us or donating to this amazing organization. Your support will help families like ours!
DID YOU KNOW THAT 91% OF HFGF FUNDRAISING DOLLARS GO BACK TO THE FLORIDA BLEEDING DISORDERS COMMUNITY? THOSE DOLLARS SEND OUR KIDS TO A MEDICALLY SUPERVISED CAMP, PROVIDE FINANCIAL EMERGENCY ASSISTANCE AND SCHOLARSHIPS, AS WELL AS CONTRIBUTE TO EDUCATIONAL PROGRAMS AND ADVOCACY EFFORTS.