About the Campaign

What inspired the Red Tie?

The Red Tie was introduced as the symbol for the bleeding disorders community in 2016, when NHF and the U.S. Department of Health and Human Services worked together to designate March as an official U.S. health observance month — Bleeding Disorders Awareness Month. The Red Tie reflects the fact the blood ties — embodied in the color red and the tie — are what bind the community together.

What is the Red Tie Campaign?

NHF’s Red Tie Campaign is an annual campaign that aims to advance the fight against inheritable bleeding disorders by raising funds for research, education and advocacy initiatives.

When is Bleeding Disorders Awareness Month?

March is Bleeding Disorders Awareness Month. NHF successfully advocated to the US Department of Health and Human Services to have the designation officially recognized.

What are inheritable bleeding disorders?

Bleeding disorders are genetic disorders that affect the ability of a person’s blood to clot properly, which can lead to extended bleeding after injury, surgery, trauma or menstruation.

Hemophilia A and B affect 20,000 people in the US. The primary symptom is uncontrolled, often spontaneous bleeding in different areas of the body. Internal bleeding, which is common around joints, can result in pain and swelling and — if left untreated ­— can cause permanent damage.

von Willebrand disease (VWD) is caused by a deficient or defective blood protein: von Willebrand factor. The most common bleeding disorder, it is estimated to affect up to 1% of the US population. Symptoms include frequent nosebleeds, easy bruising and excessive bleeding following surgery, heavy or abnormal bleeding during menstrual periods and excessive bleeding after childbirth.

Rare Bleeding Disorders are deficiencies in clotting factor I, II, V, VII, X, XI and XIII. In general, these rare bleeding disorders are passed down in an autosomal recessive fashion, which means they affect men and women equally. This also means that when the factor deficiency is inherited from only one parent, the child will be a carrier of the condition, though he or she will usually not have symptoms. New mutations may also appear; in these cases, the family history will be negative.

Platelet Disorders Our blood contains small, sticky cells called platelets. Platelets stick to blood vessels and try to block the bleeding upon an injury. They also send out a chemical signal that attracts other platelets. Those platelets stick to the platelets at the injury site to form a plug that stops the bleeding. Platelets sometimes do not work as they should and when that happens, a person has a platelet disorder.

JOIN US DURING OUR SPECIAL MONTH OF BLEEDING DISORDERS AWARENESS!

Why March Matters

Our Chapter's Annual Giving drive is held every year during the month of March as part of the national Red Tie Campaign. Funds raised during the campaign helps Bleeding Disorders Association of South Carolina to support research, global initiatives, community advocacy, education, and access to quality treatment care. All donations to our Red Tie Campaign stay within South Carolina to serve our community.

BDASC's Red Tie Campaign runs from Rare Disease Day, February 28th through World Hemophilia Day on April 17th.

Thank you for supporting our awareness campaign!

Year Round Advocacy!

World Hemophilia Day 2022

 

BDASC State Days - March 8 & 9

 

World Hemophilia Day Celebration - April 15, Greenville, SC

Please come and enjoy an evening of celebration as we end our Red Tie Campaign and recognize World Hemophilia Day! Just like family, the hemophilia community is connected by blood. On World Hemophilia Day, help us harness the power of this community to raise joint health awareness for your blood brothers and sisters around the world. We are excited to partner with Sanofi Genzyme for a wonderful night of celebration.  Gather together with us in Greenville as we celebrate World Hemophilia Day on April 15th!

When: Friday, April 15, 2022 from 6:30 PM to 8:30 PM EDT
Add to Calendar 

Where: 

The Westin Poinsett Hotel 
120 S. Main St
Greenville, SC 29601  

You will need to park on the street in the meters or anywhere available. (Reimbursement for parking and gas assistance for traveling attendees will be provided upon request)

Register Here Below! 

http://events.r20.constantcontact.com/register/event?oeidk=a07ej2l52q72a63fc1f&llr=rrgp9woab

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Take Part In Our 2022 Red Tie Campaign

How can you take part in out 2022 Red Tie Campainge?

1. Make a donation! Every dollar helps us better the lives of our members, empower members with advocacy training, promote research, and share our stories.

2. Start a Team and invite your friends to join! This is a great opportunity to share with your friends what it's like to live with a Bleeding Disorder, encourage them to secure a Proclamation, and invite them to a fun virtual BDASC event at the end of the campaign. If you get one friend to join on every "Ask A Friend Friday" and they each donate just $20, that's $140 more dollars for the Chapter to host events, hold camps, and help members in need.

3. Ask for a local Proclamation! Head over to our Proclamations Page to get everything you need to secure a Proclamation from your Town or City, and County. Help our Chapter take first place in securing the most Proclamations in the Nation!

4. Join us for Washington and State Advocacy Days. We'll have more information about these events as they becomes available.

Our Supporters

  • Lisa Bordelon March 2022 $100.00
  • Sue and Ric Martin In support of all our blood brothers and sisters throughout the nation, we celebrate this important month with you, and in honor of you! March 2022 $50.00
  • Lisa Bordelon March 2022 $100.00
  • Sue and Ric Martin In support of all our blood brothers and sisters throughout the nation, we celebrate this important month with you, and in honor of you! March 2022 $50.00

NHF Virtual Washington Days - March 1 & 2

Join the South Carolina community in Washington!

Celebrating World Hemophilia Day in Columbia with a special tribute to our M.E.N.S. Program

Tell Your Story

Celebrating World Hemophilia Day for the Whole Family in honor of our M.E.N.S. Program

Living with hemophilia or a bleeding disorders means that you will often have to advocate for yourself to doctors, employers, colleagues, friends and loved ones. In this program, we’ll talk about how to tell your story and how to craft meaningful and compelling personal messages.  

Presenter: Laith Elkhurd

CoRe Manager | DE, MD, NJ, & NY

When:

April 16, 2022 4:00pm – 6:00pm EDT

Where:

Blue Marlin

1200 Lincoln St.

Columbia, SC 29201

You will need to park on the street in the meters or anywhere available. (Reimbursement for parking and gas assistance for traveling attendees will be provided upon request)

RSVP: To Sue Martin at 864-350-9941 or sue.martin@bda-sc.org, online on our website @www.bda-sc-org

Register Here Below!

http://events.constantcontact.com/register/event?llr=rrgp9woab&oeidk=a07ej3adkpv3cb25d69