My Personal Fundraising Page
My first experience with CJD happened when I was 9 years old. One Thursday in October my healthy independent grandfather needed my mother to help him button his shirt. By the time the weekend game he needed help to stand-up and keep his balance. By Monday he was in the hospital and I never saw him again. For 6 months he was kept alive on machines while the doctors tried to figure out this mystery disease that was attacking his body. After he passed away, we learned it was CJD. Basically, his misfolded proteins (Prions) caused his normal proteins to misfold destroying his brain. Later in life I lost my Uncle Sibby and my cousin Frank to this horrific disease, unlike my grandfather, Sibby and Frank only survived 4-5 weeks after showing signs of their first symptom.
Imagine your loved one going to the doctor for muscle stiffness and finding out they have an incurable disease that will most likely take them from you within a month. It is unfathomable! That is why I fight; I fight to raise awareness of this horrific disease; I fight to support families caring for a patient with prion disease; I fight to make a difference in the battle against CJD; I fight to find a cure, but I cannot do it alone, I need your help. Please consider making a small donation so that no family will ever go through the pain of losing a loved one to CJD. Thank you.
Text to Give
To donate to my Strides for CJD text STRIDES2022 to 50155.
Donations of $250 and above are considered sponsorships.
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.