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Our Story

Hi! Many of you probably knew Kay Simpson. She was active in lots of communities and had many friends. in October of 2020 we lost her to Crutzfeldt-Jacob disease, a rapidly progressive, always fatal, and very rare prion disease characterized by the rapid onset of dementia, blurred or double vision, hallucinations, loss of balance and coordination, and a handful of other devastating symptoms. The CDC says that CJD usually leads to death within 1 year of the onset of symptoms. For Kay, it was about 8 weeks. 8 weeks, from the first time we noticed she wasn't quite herself, to her departing our world. Many days we still can't believe it.

Kay's Celebration of Life Video

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.





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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.