Hi! Many of you probably knew Kay Simpson. She was active in lots of communities and had many friends. in October of 2020 we lost her to Crutzfeldt-Jacob disease, a rapidly progressive, always fatal, and very rare prion disease characterized by the rapid onset of dementia, blurred or double vision, hallucinations, loss of balance and coordination, and a handful of other devastating symptoms. The CDC says that CJD usually leads to death within 1 year of the onset of symptoms. For Kay, it was about 8 weeks. 8 weeks, from the first time we noticed she wasn't quite herself, to her departing our world. Many days we still can't believe it.
Kay's Celebration of Life Video
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To donate to my Strides for CJD text STRIDES2022 to 50155.
Donations of $250 and above are considered sponsorships.
Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
Research grants to help scientists make important discoveries and bring us closer to a cure.
Medical education to help raise awareness and understanding of prion disease.
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