#Strides4Jimmy

At the age of 79, in the fall of 2019, my dad developed some carpal tunnel-like symptoms and nerve pain. By January, he had a slight limp. By February, he was hospitalized for diagnosis. In April 2020, he died from a progressive, undiagnosed conditions. Days after he died, we got results from an RT-QuIC test that confirmed CJD. Due to Covid in its infancy, that test had sad in a lab for a couple months as a low priority. Through quite an ordeal due to Covid, we were able to secure a brain autopsy to confirm Sporadic CJD vv2. To all who knew Jimmy (my dad), we are never surprised to hear him associated with the phrase "one in a million." This just was not the one we, or anyone, want to hear. Prion disease is in need of much increased research and funding. Help us honor his memory and fight for others.

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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My Supporters

  • Steve/Gail Moen Jimmy Rupp was a favorite of ours - he truly was "one in a million" to those who knew him! Last month $50.00
  • Kim Dwyer Last month $53.00
  • Kimberly Ehlers Last month $50.00
  • Teri Kleine Last month $50.00
  • Paquita Rupp Jimmy was truly loved and admired by so many. I loved this man, my husband, for 62 years. Thank you, Emily, for doing this for your father! September 2022 $530.00
  • View More Recent Supporters
  • Paquita Rupp Jimmy was truly loved and admired by so many. I loved this man, my husband, for 62 years. Thank you, Emily, for doing this for your father! September 2022 $530.00
  • Emily Dehn September 2022 $100.00
  • Kim Dwyer Last month $53.00
  • Steve/Gail Moen Jimmy Rupp was a favorite of ours - he truly was "one in a million" to those who knew him! Last month $50.00
  • Kimberly Ehlers Last month $50.00
  • View More Top Donors

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.