Event Details

*EVENT IS ON RAIN OR SHINE*

Date: Saturday, October 8

Location: Water Works Park, Little Stone Shelter

2025 Munroe Falls Ave., Cuyahoga Falls, OH  44221

Schedule of Events:

  • 9:00am: Registration, Breakfast Available
  • 9:45am: Opening Comments
  • 10:00am: Walk Begins
  • 12:00pm: Silent Auction/Raffle
  • 1:00pm: Event Concludes

Captain: Matt Collins - akronstrides@outlook.com

Join the Strides for CJD Akron/Canton Facebook group!

Registration Information

  • Register by Wed., Aug. 24th, 11:59pm ET to receive a free Strides for CJD t-shirt with your registration.
  • Registration costs $30 for adults and $20 for children 12 and under thru Thurs., Sept. 15th, 11:59pm ET. After that, costs jump to $35 for adults and $25 for children 12 & under.
  • Online registration ends Thursday, 12:00pm ET the Thursday before your event. After that, you can register on-site the day of your event.

The Akron Strides for CJD is In Memory Of Captain Matt Collins’ Wife Amy 

Matt Collins’ wife Amy was a pastry chef who passed from CJD in December 2018. Their story starts in the latter part of September that year. “The last day my Amy told me she felt normal was at a friend’s wedding on the 21st,” he said. From that point forward, her symptoms were balance issues and weakness in her arms and having a hard time sleeping.  

On a short trip to Michigan with her sister, she called her husband and said they were halfway but that he needed to meet them at their house as her symptoms had gotten worse and she wanted to go to the hospital. “When I met my wife at the house, her ability to walk on her own down the steps of our garage was gone as she leaned on me for help to get her into my vehicle.”  

Despite a battery of tests, everything came back inconclusive; yet, the Collins family noticed her physical condition was deteriorating, and nobody could tell them why. It was then that he noticed a doctor had written on a discharge form “possible CJD” under diagnosis. “Like many, I had never heard of Creutzfeldt-Jakob Disease, so I Googled it. What I read would forever change my family’s life as we knew it.” That weekend, he asked his children and their spouses to come over and talk about the situation with their mom and that if it was CJD, she had six to eight months to live.  

On November 1, they met with Brian Appleby, M.D. – director of the National Prion Disease Pathology Surveillance Center in Cleveland and who serves as medical director of the CJD Foundation. “He performed a very thorough exam and spent about 45 minutes with her. He then asked my oldest son and me to come back to his office as he wanted to talk. His words to us, even though we were still waiting on two tests, he was 99.5% sure that Amy had CJD.”  

Around November 10, Dr. Appleby made the call to confirm it was CJD. A day or two later, as the couple lay in bed together, she brought up the subject of the test results. “I owed my wife of 37-years the complete truth. We cried together and hugged for hours. We talked about our life together, our kids and our grandkids, and how excited she was to meet their newest grandchild, but how she was concerned for our daughter, who she didn’t want to get upset because she was pregnant.”  

Matt and Amy would share a few more nights of conversation and tears, which he will cherish forever. “Amy was such a strong person who never stopped thinking or trying to beat CJD. In our talks, she never once expressed her fear of dying, her only fear was in losing her mind and her family witnessing that.” Thankfully, the family never saw that part of the disease, they saw smiles from when her folks visited, looks that would kill if she saw something she saw, heard, or didn’t like. She couldn’t hug but she would squeeze your arm or hand and look right at you.  

On December 14, Amy died peacefully on a chilly night in her home surrounded by her family, six weeks to the day from their visit with Dr. Appleby.  

Text to Give

To donate to Strides for CJD - Akron text Strides2022 akronstrides to 50155.

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

Our Supporters

  • Karen Boyd 23 hours ago $100.00
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  • 10-2-4 Ranch 4 weeks ago $1,000.00
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  • Rose Ellen Alex May Michael Alex's memory be eternal Last month $1,000.00
  • Scott and Kim Joseph August 2022 $1,000.00
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Our Teams

Amy’s Army

$18,648.28

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Robin’s Squad

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Strides for Steph

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Big Ed

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In loving memory of Nana

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Sue’s Crew

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Team Jeff

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Friends and Family of Russ Ward

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Team Jeffrey Shrout

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Rick’s First Picks

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Team Jim B

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Miles for Michael Alex

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