Strides For Frankie Team Page

Join us for a walk/run in honor of my mom, Frankie Smillie, who passed away in 2018 after a brief and courageous battle with CJD. Currently this devastating disease has no treatment or cure. Funds from this event will go toward the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education and research programs.

If you'd like to participate:

  1. Click "Register" on this page
  2. Sign up for an "individual or small group run/walk"
  3. Make sure you've been added to the "Strides for Frankie" team
  4. Complete your registration (Note: your registration fee will not count toward our team fundraising goal)
  5. Join our Facebook event page to stay updated about the event!

A few notes...

T-shirt
All registered participants who register by August will receive a commemorative t-shirt - yay!

Donations
The goal of this event is to raise money and awareness. If you're in a position to donate, thank you so much in advance! Any amount helps, and all donations will go toward our team fundraising goal. If you're not able to donate, no problem! A major goal of this event is to raise awareness, so we'd love your help in spreading the word and showcasing your support during the event. 

The (virtual) event
There's four potential opportunities to join in:

  1. If you're in the Bay Area and would like to join, sometime between October 2 and 9, I will be organizing a small walk in the area. It will be a nice opportunity to raise awareness and hang out together. Details will be shared in the Facebook group
  2. If you're not in the Bay Area and can't join, sometime between October 2 and 9, wear your Strides for CJD shirt and post photos or videos of yourself and your family in Strides t-shirts, and spread awareness on social media. I'll share ideas for posts in the Facebook group if it's helpful.
  3. If you're not able to donate and don't feel comfortable posting to social media, you can simply help to raise awarness by wearing your shirt for a day while you're out running errands, etc. 
  4. If you don't want to participate in the virtual walk, but do want to donate, visit this page. Thank you!

Thank you for your support!

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

$1,590.00

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Our Team

Team Badges

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Our Supporters

  • Anonymous Love to you all! Frankie lives on in all of our hearts. 4 weeks ago
  • Nicholas Nicolas In memory of Frankie Smillie. One of the most beautiful, strong and creative woman I have ever met. July 2022 $250.00
  • Katherine Shrout Sending you love, Jillian! July 2022
  • Anonymous Love you and miss you, Frankie! July 2022
  • Jillian Smillie June 2022 $100.00
  • View More Recent Supporters
  • Nicholas Nicolas In memory of Frankie Smillie. One of the most beautiful, strong and creative woman I have ever met. July 2022 $250.00
  • Reyner Medina April 2022 $250.00
  • John Smillie June 2022 $106.00
  • Jillian Smillie June 2022 $100.00
  • Lora Spampinato King April 2022 $100.00
  • View More Top Donors

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.