#CURECJD #TeamValerie

Team Valerie... Enlightening the World of CJD

For those that never had the pleasure of meeting my mom, Valerie, she was a tremendous woman.  Not only was she an amazing wife of 54 years, a mom to 3 children, but also a proud, proud grandmother to two grandsons, (and in 2019, a great granddaughter named Valerie!)

She was a fierce lover of the Pittsburgh Steelers & Chicago Blackhawks, having spent most of the late 50's with my dad attending games and cheering her on.  She loved the Lord and read her Bible every morning while enjoying her cup of coffee.  She enjoyed cheering on the University of Michigan Wolverines football team and she loved lighthouses, life is good t-shirts (which she had close to 40), tennis, kayaking, and just sitting around the firepit with her family and grandsons. 

In January 2014 she began showing symptoms of imbalance which quickly turned to memory loss and other symptoms that couldn't be diagnosed properly until I took her to Rush University in Chicago.  Trying to process what the neurosurgeon said to me on March 31st, that this Creutzfelt-Jakob Disease has NO CURE, and that typically our loved one has weeks, months, but no more than a year.  He was right, after getting a second opinion at the University of Chicago, my mom passed away on May 2nd, 2014.

Since this disease doesn't get the recognition as some other diseases do, it’s even more important to raise funds to help find a cure one day and to raise awareness!

Thank you so much for your support ?


Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.





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Our Team

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Our Supporters

  • Strides '22 Chicago Cash-Donations 4 weeks ago $5.00
  • Craig Stepanek August 2022
  • Cynthia Brawner-Kaye You are missed everyday mom! June 2022 $265.00
  • View More Recent Supporters
  • Cynthia Brawner-Kaye You are missed everyday mom! June 2022 $265.00
  • Strides '22 Chicago Cash-Donations 4 weeks ago $5.00
  • View More Top Donors

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.