Marybeth's Crew Fundraising Page

Our mother, Marybeth was vibrant and full of life. Her light was evident when she entered a room and her upbeat personality was contageous. She fiercely loved her family, friends, vacations, home renovations, and grandpets. She, no doubt, shows that same love for her three grandchildren from heaven. It is difficult to identify how long our mother experienced and battled the early symptoms of this silent and devastating killer. She was an incredibly tough woman, rarely complaining and was more concerned about others than her own well-being. Her disorder may have progressed for weeks undetected. In November of 2017, our mother first identified minor vision issues. She was gone by February 2018. As our mother’s communication skills deteriorated in that short time, she reiterated two statements over-and-over again: “Never waste a minute” and “Never give up.”

We got involved with Strides for CJD to ensure her wishes, and those of many others in the future, are heard. Her contagious selflessness taught us to do what we can to ensure that no one must suffer through this alone and that someday we can rid the world of this terrible disorder. With every stride we take, we can still hear her on the sidelines cheering us on.

Since her passing in 2018, your generosty and love have allowed us to raise $15K for critical research and support for families suffering similar fates. We continue to be floored and eternally greatful for your support. Please consider joining us to walk on October 8, 2022 or donating to support our team.

The world was lucky to have such a great person and we are better for it.

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

  • Mark and Tina Helfferich Mark and Tina Helfferich
  • Mark Helfferich Mark Helfferich
  • Cooper Bundy Cooper Bundy
  • Eden Bundy Eden Bundy
  • Ben Bundy Ben Bundy
  • Barrett Bundy Barrett Bundy
  • Kimberly Bundy Kimberly Bundy
  • Tom Wurst Tom Wurst $0.00
  • Cathy Bretholf Cathy Bretholf
  • Megan Corella Megan Corella
  • Martina Freund Martina Freund
  • Maxwell Freund Maxwell Freund
  • Anna Wurst Anna Wurst
  • Tom Wurst Tom Wurst
  • Greg Freund Greg Freund Team Captain $0.00
  • Cassy Booker Cassy Booker

Team Badges

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Our Supporters

  • Strides '22 Pittsburgh Cash-Donations Last month $5.00
  • Anonymous Last month
  • Jason Dayner October 2022 $53.00
  • Anonymous October 2022 $106.00
  • Anonymous October 2022
  • View More Recent Supporters
  • Kenneth Freund Love you always June 2022 $200.00
  • Anonymous October 2022 $106.00
  • Kimberly Bundy September 2022 $57.20
  • Jason Dayner October 2022 $53.00
  • Amy Arnold Happy Birthday, Max! Always thinking of your amazing Grandmother, Marybeth! Love, Your Ohio Family June 2022 $53.00
  • View More Top Donors

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.