Join the TEAM of "Frank's FEAT"

In Memory of Frank Lamari

* FEAT - a very brave or difficult act, "dealing with CJD is no easy feat"

FEET - we walk for Frank - we are his feet just as we will continue to be his voice

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Frank's Story

5/7/1960 - 5/14/2021

Frank was born and raised in Johnsonburg, Pennsylvania and was the third of seven children to Frank Lamari, Sr. and Patricia Schloder Lamari Woodward.  At the age of 12, Frank lost his father, and although family was always a priority, from that moment on he and his siblings were exceptionally close and remain close to this day. 

Following high school, trade school and a stint with the US Air Force he moved back to Pennsylvania to be close to his  mother and step-dad Paul. He then married his wife Debbie and remained in the Leechburg area.  After 30 years working with Allegheny Ludlum in Leechburg, PA he retired in 2019 at the age of 58. His plan was to spend his retirement traveling to all the incredible golf courses throughout the USA.

Frank loved to go hunting in Colorado with his brother Pat and step-dad Paul. He was a self taught scratch golfer, earning the name Fairway Frank because he rarely missed the fairway.  Frank loved his family, was a faithful friend, had a great sense of humor and  an infectious smile. 

In hindsight, we can say that Frank began having some issues with his memory but shrugged it off as a part of getting older. After contracting COVID in January 2021, his memory lapses appeared to get worse. We all thought it was "Covid fog" but when he finally sought medical help on April 1, 2021 we found out the doctors suspected CJD.  His prognosis was 3 - 6 months. He told his mother, " all these tests may not help me but maybe they will help someone else". Little did we know , that 3 -6 month prognosis dwindled to a short 6 weeks and then he was gone. 

His family and friends were there for Frank throughout those 6 grueling weeks. Every day brought a different challenge, forgetfulness, fearful hallucinations, not speaking, loss of eye sight, not eating,  good health care, bad health care, and no medication that would change the inevitable as he swiftly deteriorated. He was called home to our Lord on May 14, 2021.

Frank was a kind, caring, and lovable guy- liked by all who knew him. We know that Frank would be saying, "Do not be sad for me, I am in a better place. I pray that you live each of your moments to the fullest and know that family truly is everything!" 

As a family we are dedicated to helping other families from experiencing the anguish and helplessness we felt as we watched our beloved Frank succumb to CJD.

Thank you for honoring Frank's life and helping other families who are faced with CJD by helping us raise money for a cure.

So that...NO ONE ELSE  has to suffer from this horrible disease!

 

 

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Supporters

  • Andrew Brunecz Last month $53.00
  • Patricia Woodward Last month $300.00
  • Strides '22 Johnsonburg Square-Donations Last month $80.00
  • Strides '22 Johnsonburg Cash-Store Last month $322.00
  • Strides '22 Johnsonburg Cash-Silent Auction Last month $610.00
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  • Gospel on the Go Ministries, Inc. August 2022 $7,100.00
  • Patricia Woodward love Mom August 2022 $5,000.00
  • Strides '22 Johnsonburg Cash-Raffle Tickets Last month $3,064.00
  • Gospel on the Go Ministries August 2022 $1,060.00
  • Strides '22 Johnsonburg Cash-Silent Auction Last month $610.00
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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.