Our Team Fundraising Page

In October of 2018, my husband Brian was displaying abnormal behavior. Memory loss, trouble speaking and walking. After many exams and tests, we were told that he had Creutzfeld Jakob's Disease. A rare progressive degenerative brain disorder that has no cure or even treatment for. It is a fatal disease. Needless to say, we were devastated. Everything was done to make him comfortable but ultimately he passed away on November 15th. 
This disease is brutal. It strips the afflicted of their ability to walk, talk and most importantly their dignity. The symptoms can progress quickly as was in Brian's case or they can linger for months even years causing pain and agony to not only the afflicted but to their families.  To this day, there is still no cure or treatment.
Please consider donating to this cause to fund research for finding a cure for so that no one else has to suffer from this ghastly disease.

Much Appreciated,

Heidi

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Supporters

  • Inge Balsamo 17 minutes ago $106.00
  • Loreal Bertini With much 4 days ago $53.00
  • Tracey Dagesse 4 days ago $53.00
  • Joe Aiello 5 days ago $500.00
  • Paula Fraulini 6 days ago $50.00
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  • Joe Aiello 5 days ago $500.00
  • Thomas Morris 5 weeks ago $318.00
  • John Morris In loving memory of my son Brian Morris.....missing him very much 5 weeks ago $180.20
  • Vashti Gray Last month $108.50
  • Inge Balsamo 17 minutes ago $106.00
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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.