Wondering Around for Katie Pohl Dopirak

Please register to walk with us and/or donate to support the CJD Foundation, in memory of Katie and others who have been lost to CJD, as well as those facing CJD currently. 

Your contributions will help the CJD Foundation continue to provide research funding to scientists and medical professionals working on projects involving CJD and prion disease, with the goal of finding treatments and hopefully a cure.  In the last several years alone, there have been significant advancements in diagnostics and the overall understanding of CJD, so while CJD is still a fatal condition, with no known treatments or a cure, there has been progress, generating positive momentum for the future.

Further, your support will allow the CJD Foundation, a Charity Navigator 4 star (out of 4) rated 501(c)(3) organization, to continue to provide informational, educational and emotional support to families facing CJD and those encountering CJD generally.

Our team name this year comes from the new children's book, "Wondering Around" by Meg Fleming.  Meg was a dear friend and close writing confidante of Katie's.  It was Meg who stepped up and, along with Katie's editor, publisher and illustrator, ensured that Hurry Up made it to publication after Katie's CJD diagnosis.  Meg dedicated "Wondering Around" to Katie, noting that Katie inspired her to write it in the Summer of 2018, as Meg sought to do something positive during a difficult time.  Meg completed her manuscript and was able to share it with Katie by video prior to Katie's passing.  Thus, we are excited to make "Wondering Around" our rallying cry for this year's Strides for CJD effort, our 4th year participating.  

Thanks in advance for your support!

The Pohl Family

Event Details:

Location:  South Park Museum and Track, 2100 Brownsville Road, South Park, PA  15129

Registration--9-10AM

Opening announcements--10:15

Candle lighting ceremony--10:30

Walk begins--10:45

Silent auction winners announced--11:30

Text to Give

To donate to my Strides for CJD text STRIDES2022 to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

$17,701.00

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Our Team

  • Joe Pohl Joe Pohl Team Captain $1,331.00
  • Rosheema Bala Rosheema Bala
  • Elizabeth McPeak Elizabeth McPeak
  • Jon Sedelmyer Jon Sedelmyer
  • Janet Sedelmyer Janet Sedelmyer
  • Matthias Kleiuz Matthias Kleiuz
  • Wife Kleuiz Wife Kleuiz
  • Margarette Kleuiz Margarette Kleuiz
  • May Kleuiz May Kleuiz
  • Anna Kleuiz Anna Kleuiz
  • Haik Safferstein Haik Safferstein
  • Karen Peterson Karen Peterson
  • Elizabeth Becker Elizabeth Becker
  • Molly Krober Molly Krober
  • Tippy Krober Tippy Krober
  • Dixie Krober Dixie Krober
  • Ellen Pohl Ellen Pohl
  • Beth Soriano Beth Soriano
  • Amy Pohl Amy Pohl
  • Meghan Pohl Meghan Pohl
  • Anna Pohl Anna Pohl
  • Julian Hassinger Julian Hassinger

Team Badges

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Our Supporters

  • Strides '22 Pittsburgh Cash-Donations 4 weeks ago $40.00
  • Dawn Ambrose Allan Last month $53.00
  • Betsy Fitzpatrick Last month $106.00
  • scott oehrle Last month $50.00
  • Lisa Riley Last month $79.50
  • View More Recent Supporters
  • Totum Realty Advisors August 2022 $1,060.00
  • Paul Pohl Always in our hearts. Uncle Mickey & Aunt Kaya September 2022 $1,000.00
  • Mary Ellen & Tom Rodgers Katie and Tip would be so proud of the entire family and their work and dedication to CJD. Love and thanks to Joe, Molly and the entire family. August 2022 $1,000.00
  • Eric Kirby We will always miss you Katie. Kirby family August 2022 $1,000.00
  • Kontos, Mengine, Killion & Hassen August 2022 $530.00
  • View More Top Donors

Recent Activity

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.