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Fit, Fun, and Fabulous Doug PJ

Dear friends, family, and colleagues –

A year ago, our beloved Doug Paddon-Jones passed away from an atrocious brain disease called Creutzfeldt Jakob Disease (CJD). In Doug’s case, the disease was swift and remorseless. He started to develop mild symptoms by the end of February, the diagnosis was confirmed in early June, and he passed away two months later. A few months after he passed away, I stumbled upon a spreadsheet that Doug had created to track his symptoms and their progression. A true scientist, he was keen to solve the mystery of his illness. Why was he getting dizzy, losing his mobility, balance, vision, and eventually his motor skills? 

I’m writing to you today because he would want us to help find a cure for CJD, solve the mystery, and ensure that no other family endures the pain of seeing a loved one affected by this disease.

On October 8, I’m organizing the first annual CJD event in Houston, TX. It will be a chance for us to come together and celebrate those we lost to CJD, build a community, and exercise our bodies and fundraising skills!  

The Houston event hopes to raise $20,000. It’s a lofty goal but I know that we can meet it. All proceeds will go to the CJD Foundation, a 501(c)(3) organization, to provide family support, medical education, and research programs. #CureCJD

Note: To donate without registering for the event click “Sponsor/Donate”. To donate and register for the event, click “Register”. 

Thank you for your contributions, your empathy, and your love.

Join the HoustonStrides4CJD Facebook group for updates. 

Alex

Text to Give

To donate to my Strides for CJD text "STRIDES2022 DOUGPJ" to 50155. 

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

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Our Team

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Our Supporters

  • Edouard Gajewski On behalf of Laurette Andrieu Last month
  • Magdaleno Rios Last month $150.00
  • Lisa Thompson October 2022 $106.00
  • Erinn Murphy October 2022 $265.00
  • Sean Kilroe October 2022
  • View More Recent Supporters
  • Tyson Greer October 2022 $530.00
  • Doug, Kerin, and Olivia Mayne #CureCJD September 2022 $530.00
  • Vanessa Ramos We support you guys!!! September 2022 $500.00
  • Brett Steinbar An amazing person! Let's find a cure! September 2022 $500.00
  • Alex Paddon-Jones August 2022 $450.00
  • View More Top Donors

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About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.