Our Team Fundraising Page
Nathan was a healthy, vibrant, generous, loving, husband, father, and grandfather. After innumerable negative tests, he received his CJD diagnosis on his 71st birthday. At the time we had no idea what that meant, except that it was non treatable and rapidly fatal. There was no time to mourn this diagnosis. We were too busy attempting to manage his symptoms and keeping him comfortable and safe.
The CJD Foundation was the sole resource that understood this disease and its implications. Our doctors, our hospice, and ultimately, our skilled nursing facility had never treated this rare and ravaging illness. The Foundation’s 800 number was the last resort when we were crashing and without answers on how to handle the downward spiral of cognitive and physical disabilities. They were kind and empathetic and experienced in dealing with the frightening complications.
If I could have my wish, there would be no more Nathans who would have to suffer through CJD. We were blessed with devoted family, friends, clergy, health professionals, and most importantly our faith to help us live one day at a time until Nathan went to his eternal rest 5 months after his diagnosis. If you are able, please help support this unique and invaluable organization that provides a singular lifeline to those in desperate need of counsel. Then, let’s do everything possible to eradicate prion diseases that destroy the essence of those whom we love.
Text to Give
To donate to my Strides for CJD text STRIDES2022 to 50155.
Donations of $250 and above are considered sponsorships.
- Diamond: $10,000
- Platinum: $5,000
- Gold: $1,000
- Silver: $500
- Bronze: $250
Diamond and Platinum Sponsors will have their name or logo displayed on participant t-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo displayed on the Strides for CJD website, and will have their name listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.
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About Strides for CJD
Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.
Funds raised support our programs including:
- Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
- Research grants to help scientists make important discoveries and bring us closer to a cure.
- Medical education to help raise awareness and understanding of prion disease.