Lesa's Legacy

10 years of missing Lesa

Welcome to the team fundraising page for Lesa’s Legacy!

​On June 26, 2016, our lives changed forever when we lost our beloved Lesa Anne Curtis to Creutzfeldt-Jakob Disease (CJD). Lesa was a vibrant, remarkable woman whose unforgettable smile, infectious laughter, and fierce, resilient spirit lit up every room she walked into. Ten years later, her light still guides us every single day.

​We refuse to let her fight be forgotten. That is why we are gathering once again for the 2026 Strides for CJD event—to honor her beautiful soul, raise critical awareness for prion diseases, and fund the vital research needed to find a cure.
​
"A beautiful soul remembered always. We miss you every day, and we will continue the fight until there is a cure."

About Fundraising

Donations of $250 and above are considered sponsorships.

Sponsorship Levels:

  • Premier: $20,000
  • Diamond: $10,000
  • Platinum: $5,000
  • Gold: $1,000
  • Silver: $500
  • Bronze: $250

Premier, Diamond, and Platinum Sponsors will have their name or logo* displayed on participant T-shirts, the Strides for CJD website, and signage. Gold Sponsors will have their name or logo* displayed on the Strides for CJD website, and will have their name (not their logo) listed on participant T-shirts and signage. Silver and Bronze Sponsors will have their name listed on the Strides for CJD website only.

The deadline for Sponsors' names (individuals) or logos (companies) to appear on participant t-shirts is Sunday, August 9th at 11:59pm Eastern time. Sponsorships made after the sponsorship deadline will have their name or logo* displayed on the Strides for CJD website only. 

Text to Give

To donate to our event text STRIDES2026 to 50155.

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Register

Please note, sponsorships/donations do not include registration; rather, sponsorships/donations and registration are separate transactions. To register*, please click here.

*Registration fees do not count toward the sponsorship and team fundraising deadline or the fundraising competition. They will not appear on the team or individual fundraising thermometers.

How to Register

My Supporters

  • Stephanie Clark 3 days ago $1,000.00
  • Stephanie Clark 3 days ago $1,000.00

My Badges

  • Fundraising Achieved
    Fundraising Achieved

    Awarded when Anyone reaches 100 % of goal

    Awarded 06/22/2026

  • Team Fundraising Leader
    Team Fundraising Leader

    Awarded when a Team Member raises the most funds for their team

    Awarded 06/22/2026

  • Donation Goal Reached!
    Donation Goal Reached!

    Awarded when Anyone reaches 100 % of goal

    Awarded 06/22/2026

View All Event Badges

My Teammates

About Strides for CJD

Strides for CJD is an annual walk/run to raise awareness of Creutzfeldt-Jakob Disease (CJD), a rare neurodegenerative disease that has no treatment or cure. Through this event, anyone -- anywhere -- can pay tribute to their loved ones and raise funds for the CJD Foundation, a 501(c)(3) organization.

Funds raised support our programs including:

  • Our 24/7 helpline, support groups, conference, and other family programs throughout the year.
  • Research grants to help scientists make important discoveries and bring us closer to a cure.
  • Medical education to help raise awareness and understanding of prion disease.