Welcome to the team fundraising page for Lesa’s Legacy!
On June 28, 2016, our lives changed forever when we lost our beloved Lesa Anne Curtis to Creutzfeldt-Jakob Disease (CJD). Lesa was a vibrant, remarkable woman whose unforgettable smile, infectious laughter, and fierce, resilient spirit lit up every room she walked into. Ten years later, her light still guides us every single day.
We refuse to let her fight be forgotten. That is why we are gathering once again for the 2026 Strides for CJD event—to honor her beautiful soul, raise critical awareness for prion diseases, and fund the vital research needed to find a cure.
"A beautiful soul remembered always. We miss you every day, and we will continue the fight until there is a cure."
Why Your Support Matters
CJD is a rare, rapid, and currently incurable neurodegenerative brain disease. When our family was forced to navigate the devastating reality of this illness, the CJD Foundation threw us a lifeline. They walked with us through our darkest moments, providing guidance, medical education, and invaluable support.
By donating to Lesa’s Legacy, you are directly supporting the CJD Foundation’s mission to:
Fund Medical Research Grants: Aiming to find effective treatments and, ultimately, a cure.
Provide Family Support Programs: Ensuring no family has to face the isolating reality of a prion disease diagnosis alone.
Expand Public & Medical Education: Helping doctors recognize symptoms earlier and providing families with accurate information.
Stephanie Clark Team Captain $1,000.00
Cody Clark
